We have 2 sets of documents that are kept in the home in the hospital suitcase, one is a patientenverfügung, translated living will (not a testament) giving instructions of what should happen in such cases the other is a Vollmacht, Power of attorney for someone you name to have your wishes carried out (that reminds me I haven´t found a replacement yet). In both documents there are many questions for different circumstances to answer, this way you are in full control of what your wishes are.

I’m not sure how valid a GPS care plan is

Is it merely advisory?

I can’t really see how decisions can be made in advance of a given situation, if oxygen therapy could save life then opting for no hospital treatment in advance we obviously lesson chances of recovery in the event of contacting CoVid19 and requiring oxygen as opposed to incubation

Seems to me there is a rush to ensure care plans are “ up to date” which is resulting in a mixture of 10 year old information and hastily contrived new

Even consultants letters seem to be ignored and even I am not sure what new drugs are recommended

I have never seen the stroke consultant due to my fever, he telephoned then wrote the equivalent of war and peace on my condition, stating what tests I require when the lockdown ends

Have not been contacted by the rheumatology team and therefore have not restarted methotrexate even though I have left messages

I’m not sure what my weight and BP recorded over 5 years ago is relevant on today’s record

All in all I’m not over confident that my medical records are in any way up to date

Alberts last eye appointment recorded that he needed urgent laser treatment on his left eye, ( glaucoma)following it up he found no action had been taken nor recorded and the consultants secectary is supposed to be following it up urgently

Doesn’t exactly inspire confidence does it?

Sandra

Sad to hear that Sandra and I would agree that it does not inspire confidence, but it may well be a reflection of the "Out of sight, out of mind" philosophy that can be found when people have too great a work load.....

It does not make it acceptable, but sadly probably inevitable.

All you can do is send written requests to each specific person requesting an update asap and that the actions already raised be carried out if at all possible, failure to do some of those things could have life-changing consequences (a phrase that is worth including). As you are well aware, if it is in writing it carries considerable weight, if not, then it has not happened (as Lesley said from her nursing practice).

At present, I suspect everyone's thoughts are on the virus and other things have been set to one side. It could be that even the rheumatology specialists are now operating ventilators as most Drs have been moved and given the extra training required for such things - not desirable but understandable.... 😢

Another motorhome (RV) friend died of the virus last night. Thats two we know.

Ray.

@Ray 😢

There is no button that we can press to exhibit "sorrow"

So sorry to hear that Ray. Sadly, this will come more and more to our door.

Sad to hear that Ray

It’s taking me a long time to recover , Albert thinks I had corvid19, I can’t imagine I did if he didn’t get it, he was under the weather for a few days

Neither of us had breathing difficulties

Sandra

Sorry to hear that Ray.

Sandra, I am with Albert in that, he may well have had it even milder,bthank heavens, but when we struggled to get hold of you, that was my belief as expressed in a PM to Barry....

But, hopefully, it is behind you now, just don't go drinking out of a wet glass....

Could be,Dave, I lost smell and taste, couldn’t even smell my perfume directly from the bottle

Continuous High temp but no real signs of urine infection, unable to eat or drink, it just bubbled and frothed back, lost a lot of weight quickly

Left very light headed, can walk now to the loo and around the furniture with care but soon tire

But I can drink, how special is that when you are dehydrating but can’t get fluids down

Thank goodness for the nurse practitioner from the rapid response team, he braved a visit and brought me a commode which I desperately needed as I couldn’t balance out of bed

If I did get Covid I’m one of the lucky ones, mostly I was afraid Albert would get it

Although if I’m honest I did at one stage think I wasn’t going make it

Thank goodness for Albert and for young Albert who picked me up of the floor on several occasions and basically carried me to bed

It’s good to have family

Sandra