Did you ever find out about the pain clinic Sandra?
Chris is not allowed to mention his pain in front of our daughter (a physiotherapist) because she has told him, countless times, that there are answers out there but they need to come from specialists. These specialists can prescribe drugs that can be taken along side other medication and by people with various ailments that preclude them from taking the usual drugs.
Wouldn't it be wonderful to find out that you could be pain free?
Now I didnít Pat
No referral was made
In desperation I allow myself two ibuprofen a day
Sod my kidneys
When arthritis first started to impact my life
It took two years before the GP listened
I was a hypochondriac
He told me my bloods were fine , I was fine, I could hardly walk
And finally I told him to get me a wheelchair
He referred XRays
And found I have a type of arthritis due to calcium crystals in joints and ligaments
The flare ups I was not imagining
When I couldnít walk, I couldn't walk
So alls gone well from then?
Well it hasnít, tablets to relieve pain I canít take
They have found others?
They havenít bothered
Itís been two years since I saw the rheumatologist
And steadily Iím getting worse
Iím thinking should I get a toilet seat that raises it , cos sometimes itís hard
Seats are a problem
And when Iím invited out I worry
Can I sit down
And more importantly get up again
At home I have a seat
I can eat at the table
And who knows when I begin to ride on the trike
Iíll be transformed
Ask at reception in your surgery to see if you can self refer to a Pain Clinic. I know you can self refer to a physiotherapist so it may be possible to get yourself an appointment without having to persuade your GP.
They are the specialists. It is their passion to help people cope with their pain so make use of them.
Sandra, I'm sure in your working life you advised many patients on ways around their difficulties. Perhaps you should apply the same thinking to your own situation? I know you're fighting against getting older and less able, but in doing that you're making life much more difficult than it need be.
A cleaner, as suggested, is an obvious answer to one of your difficulties - and if the first doesn't work out, try another.
Install a high toilet seat - we did when we moved to our ground-floor apartment shortly before my husband died. We weren't going to get any younger, and it's been great.
Pursue the pain clinic as advised by Pat - and then work on acceptance! (said in a supportive manner)
I know Iím having difficulties
I know Iím getting older
It was just too sudden for me
Iím no spring chicken, nor do I expect to be
I just didnít expect this
That my body would give up before my mind
Not cancer or as yet any life threatening illness
Although my heart valve is pushing its last in years
Somehow that doesnít matter, I knew when I chose a tissue valve itís life was limited
But I didnít expect my bloody joints to give up the ghost
Trap me in a situation that I canít seem to sort out
My little bit of a cow I can talk to , itís me and him or maybe her
And we have an agreement he/ she will do the best they can
My joints, ligaments are strangers
Will my bit of a cow desert me too .??
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