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post #21 of 45 (permalink) Old 30-01-2016, 11:25
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Thanks Boys I promise to stay around and natter again. xx
I do hope so,enjoyed your posts!
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post #22 of 45 (permalink) Old 30-01-2016, 17:25
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Originally Posted by barryd View Post
Hear Hear! Well done Mavis. Is there a link to her facebook site?

She was a brilliant contributor on here but sadly for whatever reason (like so many) we do not hear from her anymore.
although they call her 'our Mavis' she dooesn't appear to contribute much on the site anymore, but she does attend some of their rallies.
Think she must be so busy with her meso activities.

https://www.facebook.com/mavis.nye?fref=ts
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post #23 of 45 (permalink) Old 30-01-2016, 17:49
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No Sue i have been so busy with Treatment. The trial has been 2 years and I have 5 more Infusions to go. Keytruda is a marvellous drug for some and they trailed 22 cancers. im the only Mesothelioma patient that it has worked for and they are studying my DNA to find out why. I have put a piece in health so people will always be able to sort info on the horrible disease that is taking away so many Mesowarriors. I will fight to the end as I have fought for 7 years now. xx
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post #24 of 45 (permalink) Old 30-01-2016, 17:57
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Thanks for updating us Mavis, hope the treatment is not too tiring for you. Delighted with your award, well deserved x
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post #25 of 45 (permalink) Old 31-01-2016, 01:18
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Well maybe

You will remember Albert ,

That visited you

Or maybe you won't

Remember he was that guy that talked about trials

Didn't even talk about his cancer

Was interested in yours

But maybe you missed my anxiety

Easy to do
With this guy who just absorbs others worries

Sandra
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post #26 of 45 (permalink) Old 31-01-2016, 07:41
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What is your problem --I havent paid 12.50 to fight with you
Albert has never visited me (well you did once when you came to the P&R years ago) so stop making me out to be the bad guy here
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Last edited by locovan; 31-01-2016 at 08:14.
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post #27 of 45 (permalink) Old 31-01-2016, 08:04
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Well - I'm glad you're back Mavis.
Please stay and keep us up to date with your campaign and your health.
Steph
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post #28 of 45 (permalink) Old 31-01-2016, 08:17
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Well - I'm glad you're back Mavis.
Please stay and keep us up to date with your campaign and your health.
Steph
My hand is hovering over the button but then I read all te nice bits and also been reading back through the Forum and realise I do miss the chat we use to have. We really must get back out in the M/H more life has been so serious lately i need a laugh.
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post #29 of 45 (permalink) Old 31-01-2016, 08:24
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Are you going away?
There's nothing like motorhoming for ightening a burden I think.
We're going to France at the end of March and then on to Italy. This is the first European tour we've been able to do, because of illness, since coming back from Germany 5 years ago and can't wait.
We've been touring around the Uk these last two summers and had some great weather but nothing beats being in France, Italy or Spain.
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post #30 of 45 (permalink) Old 31-01-2016, 08:46
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Are you going away?
There's nothing like motorhoming for ightening a burden I think.
We're going to France at the end of March and then on to Italy. This is the first European tour we've been able to do, because of illness, since coming back from Germany 5 years ago and can't wait.
We've been touring around the Uk these last two summers and had some great weather but nothing beats being in France, Italy or Spain.
Thats been the problem I have been in treatment for 7 years now on and off .4x6 Chemos and the fight to find treatment when they said their was no more. I was on sticks and Walker at that point and 3 months away from death. Researching and finding a trial was horrendous. I finally got refereed to the Royal Marsden where I have been for 2 years on a trial. The drug is given every 2 weeks and we have to travel from Kent m20 m25 and that is no joke. getting up at 4 and it takes all day we get home again about 5 or 6pm It has restricted our going away as such so we have done some local camping rallies. Just got over another crisis as I had Sepsis in the PIC Line so for months as they used it it pushed the bug into my veins and i finally went into shock 2 weeks ago and was rushed into hospital and filled to the brim with Antibiotics. I think Im back to normal. Roll on the sun and let me out there
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