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post #1 of 21 (permalink) Old 08-04-2021, 20:24 Thread Starter
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Not well

Iíve suffered from back pain for a long time

Gradually itís got worse

And I can no longer stand for more than a few minutes and walk

Iím waiting for an X-ray but itís taken 6 weeks

I have inflammatory arthritis which means I am really stiff and struggle to move even without back pain

Every day I get up and struggle to walk

It takes hours to even cook a meal, sitting down between tasks

Covid hasnít helped as itís prevented any appointments

But Iím still alive, but to be fair Iím beginning to wonder if itís worth it

Sandra
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post #2 of 21 (permalink) Old 08-04-2021, 22:22
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Sorry to hear that Sandra. Arthritis of any description is no fun. I can sympathise, mine has got much worse in the last year. It really is restrictive so I know how you feel. However you need to think positive and try and find things you can do that make you happy but dont cause you pain. So far music and drinking seems to work for me. Maybe a trip out in the van?
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post #3 of 21 (permalink) Old 09-04-2021, 07:51
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The spine has lots of joints so maybe the arthritis is in there too? I have been diagnosed with osteo arthritis of the spine. Since seeing a physiotherapist and following their exercise routine it gives me no more trouble. She explained that all our bones are supported by muscles and ligaments. If we strengthen them as much as we can the bones and joints are supported and the inflammation subsides. I highly recommend a physiotherapy consultation (not an osteopath or chiropractor)
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post #4 of 21 (permalink) Old 09-04-2021, 10:12
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Sorry to hear that things are getting worse: I'm afraid it's an almost inevitable consequence of getting old.
My Dad used to say that "getting old was no fun" and I used to retort "but it's better than the alternative".
However, now that I'm feeling the effects I have a lot more sympathy.

Stay strong and enjoy what you can: perhaps Barry can send you some of his singing?

Gordon
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post #5 of 21 (permalink) Old 09-04-2021, 10:41
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Chris's mum used to say - "don't get old, Chris".

Pain, however, should be controllable. I am sure there is an answer out there but the medics need to be motivated to find it.

I have had really bad double vision again. The thought keeps entering my head that it is "useless" to talk to the GP because it was such a bad experience last time (was told it was old age and got shouted at that "did I know there is a pandemic on? Well did I? Did I?" That is a very dangerous route to go down. I am wrestling with myself to complain about her behaviour. I know I should but can't summon the energy.
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post #6 of 21 (permalink) Old 09-04-2021, 11:38
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Sad to hear that Sandra and I wish I could offer positive advice but you know more than the rest of us put together about how it is affecting you.

ďPain is what the patient says it is, where the patient says it is and when the patient says it is.Ē

Sadly, many Doctors are determined that only they can say when someone is in pain based on their training and experience. That can make it much harder to find suitable analgesia either via medication (including morphine patches at low doses), or TENS machines, or any other technique. It is important to seek referral to a pain specialist if you are not able to stand or move without major discomfort.

Just as an after-thought, have you tried hydrotherapy eg GENTLE swimming ? I suspect that the palaver of getting ready and into a pool, as well as out, may be counter-productive, but properly arranged hydrotherapy can be helpful (my daughter is having that twice a week in a specially warm pool and, while tiring, it does help her. She has chronic disabling bad pain from nerve damage due to an unknown cause.

It MIGHT be something to ask about ?
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post #7 of 21 (permalink) Old 09-04-2021, 12:05
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Quote:
Originally Posted by patp View Post
Chris's mum used to say - "don't get old, Chris". .
My mum used to say exactly the same Pat as she approached 88 and on to 90.

Ray.
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post #8 of 21 (permalink) Old 09-04-2021, 12:21
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I can only say I hope you will improve as the weather gets warmer. Arthritis of any kind is a painful affair, donīt do anything that aggravates it. Standing in one place preparing meals is a killer, even washing up puts a strain on the joints.
I wasn't able to walk very far earlier in the year, I was prescribed cortisone for a skin problem, it did help the skin, but also the arthritis, I finished the tablets now so hope the walking problem doesnīt come back.
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post #9 of 21 (permalink) Old 09-04-2021, 12:48
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Sorry about this, Sandra. I know how painful, restrictive, and sometimes unpredictable arthritis can be. You have my sympathy. And of course there's the tendency to try to think of any advice, but you've probably tried it all and know what works and doesn't work for you. I do agree with Pat though that physiotherapy might be worth a try. The one I have used in the past now do on-line consultations, as no doubt do many others. If it's any help here's the link.

https://www.physiotherapies.co.uk/online-assessments/


Fortunately for me, mine (ankles, left knee, right hip) is not too bad at the moment and I'm trying to make the most of it by going on short walks, doing exercises at home, but trying not to 'overdo it'.


Chris
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post #10 of 21 (permalink) Old 09-04-2021, 13:49 Thread Starter
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During Covid cortisone injections were limited to low dose the rheumatology nurse informed me, they are a short term miracle

It may have changed as the vaccination procedure gets underway or not

Trouble is I havenít seen the rheumatologist for over 18 months having missed my 6 month appointment last March due to Covid , I have the nurses number but I really need to see the consultant as I donít want to go back on methotrexate, particularly as the dental surgeon doesnít recommend it with implants, so Iím guessing my inflammatory markers are high judging by how stiff and immobile I am , add the low back/ hip pain to the painful joints and Iím stuffed

Touch wood I havenít had a serious flare up in my joints, just short lasting flareups that come and go, mines pseudo gout due to calcium crystals but itís no less painful than gout as Barry knows, the crystals surround my joints and make my movements stiff but if they move into the joint itís agony

Two more weeks till the XRay when hopefully we will see whatís happening in my back and hip

Sandra
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