Joints - Motorhome Forums, Motorhome Discussion, Motorhome Chat

User Tag List

 45Likes
Reply
 
LinkBack Thread Tools
post #1 of 124 (permalink) Old 17-08-2019, 21:34 Thread Starter
Senior Member
 
aldra's Avatar
 
Join Date: Jul 2009
Location: bury lancashire
My Motorhome: Adria coral supreme
Posts: 27,123
Thanks: 911
Thanked 407 Times in 390 Posts
Joints

Well

I have have spent ten days in agony with calcium crystals in my foot

Not my toes my foot and ankle

Itís settled now , not agonising but painful and stiff and I struggle to walk

And I asked to be referred to the pain clinic as Iím not supposed to take anti inflammatory drugs nor the drugs to shorten the time of flare ups

And Iíve attended for 8 weeks now , but as yet no suggestion of pain or anti inflammatory medication



The physios tell me how important exercise is

But Iím worried

My finger was the last to flare, it has taken weeks to subside from agony to just painful

And now I can now longer bend it

The joint is damaged

My foot is taking weeks, I struggle to walk on it, itís flared up constant times before

Will that also be damaged ?

And will anyone listen.?

I see the rheumatologist in a few weeks

Sandra
aldra is offline  
Sponsored Links
Advertisement
 
post #2 of 124 (permalink) Old 18-08-2019, 07:16
Senior Member
 
Join Date: Apr 2007
Location: Norfolk
Posts: 4,403
Thanks: 163
Thanked 192 Times in 188 Posts
Sorry to hear this Sandra.

All you can do is try your best with the exercises. Would doing them in warm water help? Physios know their stuff and so it is best to listen. Physios are often trained in acupuncture. If you haven't tried it already it is really worth trying. Even if you have tried it sometimes a different practitioner will succeed.
I imagine everyone is leaving the drug therapy to the Rheumatologist. Let's hope that he or she has a wonder drug up their sleeve for you.
patp is offline  
post #3 of 124 (permalink) Old 18-08-2019, 18:59 Thread Starter
Senior Member
 
aldra's Avatar
 
Join Date: Jul 2009
Location: bury lancashire
My Motorhome: Adria coral supreme
Posts: 27,123
Thanks: 911
Thanked 407 Times in 390 Posts
I doubt it pat
She prescribed a drug to cut short the immune systems reaction to the flare ups, and therefore shorten them

Then went on to tell me I shouldnít take them because of my kidney readings

Iím not doubting the exercises , mostly walk more and more frequently

But almost constant flare ups that last for up to 10 days of really painful joints and then about the same time of just painful and stiff joints, even the bathroom , which is on suite takes some effort to reach

And Im not ashamed to say some days I just have to wee in a bowl, take the forbidden anti inflammatory drug and wait

At the moment the intense pain in my right foot has subsided to just painful, tonight the mere touch of the sheet will not feel like a raw open wound

So I have it bound in kinetic tape which means I can now walk around the house and manage a bit of housework

And when a joint is painful and inflamed with crystals ,trying to walk on it puts strain on other arthritic joints

The good thing is pain in my hips and knees generated by coping with flare ups is nothing compared to the scale of pain in inflamed joints

So the fact my joints are generally stiff and painful is bonus when on the rare occasions I donít have a flare up

I expect to live with pain now

But I was hoping the pain clinic should direct me to a pain expert

And who knows maybe they will

But you know, Iím not holding my breath

It has come as a shock to me how quickly my mobility has deteriorated , how my confidence has dropped in leaving the confines of the house I know

How my feet donít clear obstacles , and during flare ups how accidentally standing on two levels, be it a raised pavement or rug means Iím no longer stable

So Iíll go occasionally to a supermarket , smooth floors , the van I can manage, always something to hold on to

My arms are good, well goodish

And if I can crack that trike

Who knows

Sandra
aldra is offline  
 
post #4 of 124 (permalink) Old 18-08-2019, 19:19
Senior Member
 
Join Date: Apr 2007
Location: Norfolk
Posts: 4,403
Thanks: 163
Thanked 192 Times in 188 Posts
Sounds awful, Sandra. I have just a little arthritis in my thumb joint and find myself worrying about the future. I don't know how you cope. Let's hope the pain clinic can do something for you.
patp is offline  
post #5 of 124 (permalink) Old 18-08-2019, 19:56 Thread Starter
Senior Member
 
aldra's Avatar
 
Join Date: Jul 2009
Location: bury lancashire
My Motorhome: Adria coral supreme
Posts: 27,123
Thanks: 911
Thanked 407 Times in 390 Posts
My thumbs ,my fingers, my hips, knees and feet

My shoulders are now joining in

My elbows are free as yet

But itís the painful flare ups of the calcium crystals

Thatís devastating my life

I never know when I get up in the morning

Is it, isnít it ?

Itís sudden , agonising painful

And all too frequent

And takes so long to resolve

And my finger joint I can see , itís damaged, it know longer works as it should

And I canít see into my foot or knee

Are those also damaged .?

Sandra
aldra is offline  
post #6 of 124 (permalink) Old 18-08-2019, 21:08
Senior Member
 
Join Date: Apr 2007
Location: Norfolk
Posts: 4,403
Thanks: 163
Thanked 192 Times in 188 Posts
Ouch!

Let's hope that the pain clinic has the answer.
patp is offline  
post #7 of 124 (permalink) Old 18-08-2019, 22:28
Senior Member
 
randonneur's Avatar
 
Join Date: Jan 2007
Location: Cheshire, England
My Motorhome: Autotrail Tracker EKS SE
Posts: 836
Thanks: 6
Thanked 45 Times in 42 Posts
Personal Aire
The reason crystals form is not drinking enough water, should be a least 2 to 4 litres per day according to the Christie Hospital advice, anti-inflammatory medication damages the kidneys and know to my cost having been on them for years in France. Unfortunately gel only lasts for 2 hours.
aldra likes this.
randonneur is offline  
post #8 of 124 (permalink) Old 18-08-2019, 22:47 Thread Starter
Senior Member
 
aldra's Avatar
 
Join Date: Jul 2009
Location: bury lancashire
My Motorhome: Adria coral supreme
Posts: 27,123
Thanks: 911
Thanked 407 Times in 390 Posts
I drink loads of water

My calcium crystals are a legacy of a tumour on my parathyroid

Unfortunately unlike gout crystals they canít be controlled by medication to reduce them

I know that anti inflammatories are not good for kidneys

But sometimes quality of life out-ways quantity

I get weary of constant debilitating pain

Sandra
aldra is offline  
post #9 of 124 (permalink) Old 19-08-2019, 08:34
Senior Member
 
Join Date: Apr 2007
Location: Norfolk
Posts: 4,403
Thanks: 163
Thanked 192 Times in 188 Posts
I am with you, Sandra, on quality beats quantity. I went back on to HRT after we were all scared off it because of the cancer risk. I discussed it with my doctor and came to the conclusion that my quality of life meant more to me than the quantity. By the time it matters I might be dead from something else anyway.
If you have some quality of life then you keep other ailments away by getting out and about.
patp is offline  
post #10 of 124 (permalink) Old 19-08-2019, 08:36
Senior Member
 
Join Date: Apr 2007
Location: Norfolk
Posts: 4,403
Thanks: 163
Thanked 192 Times in 188 Posts
Do be aware that, sometimes, they will not prescribe a drug unless you actively campaign for it. They have to cover their backs against being sued I suppose. It took me a couple of, long, consultations to talk my doctor round.
patp is offline  
Reply

Quick Reply
Message:
Options

Register Now



In order to be able to post messages on the Motorhome Forums, Motorhome Discussion, Motorhome Chat forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.

User Name:
Password
Please enter a password for your user account. Note that passwords are case-sensitive.

Password:


Confirm Password:
Email Address
Please enter a valid email address for yourself.

Email Address:
OR

Log-in










Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page



Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

 
For the best viewing experience please update your browser to Google Chrome