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post #131 of 140 (permalink) Old 22-11-2019, 17:41
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Just seen this posted on a physio site.

Great post by @embrklifestyle 😊👍:
ď[PAIN SENSITIVITY VS. TISSUE DAMAGE]

The nervous system is like Pepperidge FarmÖit remembers.
Sometimes a better way of thinking about pain when it persists after an injury is to think of it as sensitivity. When our body gets hurt, we become sensitive to certain stimuli because the nervous system is trying to protect us.

This is great when we first get injured because it alerts us to prevent subsequent harm but not so great when our tissue is healed. It's normal to have some sensitivity when coming back from an injury. After all, our brain is just trying to protect us.

However, after a certain time frame, we know that our tissues/muscles have healed. In these scenarios, we should not relate hurt to harm but instead to sensitivity. You can work around sensitivity by gradually re-introducing activities in varied intensities that once provided discomfort.

You're not broken and as long as you are livingÖyour body does a stellar job at adapting.Ē

Do you want to learn more about pain and the sensitivity of the nervous system?
Then you can check out the online courses made by Mike Stewart and Niamh Moloney/Martin Rabey on www.trustme-ed.com/lectures 🤓👍
#keeplearning
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post #132 of 140 (permalink) Old 22-11-2019, 18:30 Thread Starter
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Iím not sure Iím saying that the repeating nightly cramps are causing damage per say

But they are now leaving me sore in the affected muscles during the day ,a bit like an over workout at the gym might

And Iím still not that steady when all is well

And I really donít need tired painful muscles added to it

Particularly as I havenít run a marathon or climbed a mountain

All of the pain but non of the gain

Sandra
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post #133 of 140 (permalink) Old 24-11-2019, 19:55
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This may not be the best solution for you Sandra, but I keep a salt pot next to the bead. Cramp... sprinkle a little on my hand... lick.. rub affected part for 30-60 seconds. Cramp diminishes.
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Viv

"When I was 17 the boys used to call me "Coke-bottle-legs". Fifty years later, they are still like Coke bottles. Sadly, the 2 litre version!"
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post #134 of 140 (permalink) Old 25-11-2019, 08:54 Thread Starter
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Iím pretty certain itís a reaction to either the cortisone injection or the methotrexate Viv

It started when I began the medication and has got progressively more frequent

It follows the same pattern every night , or day if I try to catch up on missed sleep

One or two hours of sleep, cramping spasms in both feet followed by a deep painful burning ache, that runs from ankle to knee on the outside of both legs

Relieved only by getting up and walking about for about half an hour , then waiting for the residue pain to subside

I spend almost as much time walking around at night as I do sleeping

Yesterday I noticed that Iím getting cramping spasms in my hands too, if I hold a kindle or the iPad for too long

I sometimes get ď normalĒ cramp in my calf or thigh but not in such a regular defined pattern as this,

Iím going to contact the rheumatology clinic today, I have a direct number, to see if I should see the rheumatologist or my GP, hopefully they can give me something to calm things down

I donít know how long steroids stay in the body following an injection , Im told to carry a card for three months following the last injection to inform medics that Iíve had steroids injected

Iíll soon be getting up before Iíve been to bed

Sandra
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post #135 of 140 (permalink) Old 25-11-2019, 23:14
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Sorry for your suffering Sandra! Hopefully you will get a solution. I can imagine it's more than tiresome, in both senses of the word.

Viv

"When I was 17 the boys used to call me "Coke-bottle-legs". Fifty years later, they are still like Coke bottles. Sadly, the 2 litre version!"
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post #136 of 140 (permalink) Old 27-11-2019, 22:20 Thread Starter
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Well itís more disappointing

Following the first steroid injection I came alive

Stiffness disappeared, pain disappeared

I felt great

Flare ups vanished

And to be fair flare ups are a thing of the past even now

But the nightly cramps and the feeling of weak muscles during the day

Iím struggling with

So very disappointed

I really thought it was a new me

Sandra
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post #137 of 140 (permalink) Old 28-11-2019, 08:18
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There was a stage where you didn't think they would be able to help your painful joints and they did. So don't despair, just yet, that they will not be able to help the cramps.
Make sure you have ticked all the usual boxes like hydration (2 glasses of water when you get up, 2 before breakfast, 2 before lunch and 2 before dinner) and mineral deficiencies etc. Try the cork in the bed and a bar of soap in the bed that many people swear by.
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post #138 of 140 (permalink) Old 28-11-2019, 20:04 Thread Starter
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I will pat

But my legs are weak and tired from constant spasms and painful cramp

Repeated over and over every night
Probabally the same on my feet

My hands And wrists are beginning to spasm

And Iím really afraid that I begin to feel that same pain up my arms

But it is fascinating to see my joints turn inside out on my hands

Painful, but fascinating

Probably the same on my feet

But I canít see that close up

Sandra
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post #139 of 140 (permalink) Old 29-11-2019, 08:40
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Are you eating the special diet devised to help Albert?
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post #140 of 140 (permalink) Old 30-11-2019, 18:37 Thread Starter
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Iím absolutely sure itís either the new drug or the cortisone injection

prob/ the latter

As now use time goes on I need only to get up twice in the night to relieve the pain , it was every two hours

Sad because it was a miracle during the day

To be fair those constant painful flare ups are no longer happening

My inflammatory markers are coming down

Iím getting a bit stiff again

But Iím certainly not a zombie yet

In the throw of feeling alive, I threw a pie party

50 + are coming, thatís a lot of pies

But a lot of friends and family

And Iíll cook them with love, as I usually do

And go on Iíll enjoy cooking , meat and potato, steak and mushroom ,turkey and ham, fish pie

And Iíll throw in salmon quiche, broccoli and cheese quiche

And it will all be fine

Because if they didnít want to be here

They wouldnít come would they ?

Iím not on trial, Iím the me they all know

A less than perfect mum

A perfect grandma , which annoys my kids brought up by a less than perfect mum

But what the heck

It looks like Iíll have reached more than perfection when my great grandkids arrive

And I canít wait for the day when our megs has a child

Favouritism ?

No, proximity, I walked the floor with this kid night after night

Whilst here mum was at university , dropped her at nursery and picked her up

And she is perfect ?

No she is a self opinionated know it all

She will be an excellent lawyer

I think

Sandra
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